Hello there,
Glad you got your appointment through Barbie and not too long to wait now. Lets hope that report gets through before then.
Wishing you all the best for your appointment and for getting some access to OT support and also physio, podiatrist advice and anything else available - areyou making a lsit of things to mention?
Take care love Liz xxxxx

Hi Liz and Julie, Will have a list, especially now I know more about what can be done. Just been to see one of the better GPs in the practice, he has prescribed some predisolone for me, 30mg for 1 week, then 15 for 3 days and slowly getting to 5mg on a regular basis. He has also given me calcium pills as he says if I need the pred for a while it can affect the bones. Will get the script tomorrow, not up to getting on a bus and going today. He also said to make sure not to get an infection as takig the mtx and pred will make the immune system even worse. If I do get a fever to seek medical help immediately.
Feeling very achy and sore today, bit flu like, but its def not flu as have had the jab, and no temperature or anything. Knowing my luck it s the start of a flare.

At last you have some help!


Praying this will help and bring fast relief!

Much love,

Amanda

Thanks Eleanor, I can remember reading about the steroid card, but probably wouldnt have thought about it. Also the bullet points, really good idea, will do that over the weekend.
Thank you Amanda, always there for us, and so thoughtful and kind, bless you x